I have Short QT Syndrome.
Resources about this disease are scarce, as it is so rare. That's why I decided to set up a website with basic and extended information about it.
Please choose one of the categories at the top of the page, or, if you are on mobile, in the hamburger menu at the top right.
This blog might chronicle the journey to a patient organisation for Short QT Syndrome. Or it might not. Time will tell.